How to support someone with dementia: what help can I get?

Does your husband, wife, mum or dad have dementia and you feel overwhelmed? You’re not alone. Like other serious conditions, dementia is a condition that doesn’t just affect the person with the diagnosis. It has an impact on their loved ones too. In fact, according to a 2018 Alzheimer’s Society survey, a staggering 9 in 10 carers of people with dementia feel stressed or anxious every single week.1 You don’t have to struggle through the challenges of dementia alone. If you need help for your husband, wife, mum, dad or someone else, there are immediate resources available.

Does your loved one need support at home?

If your loved one has dementia and needs extra support at home, our friendly Dementia Carers can help. Our Care Teams provide high quality Dementia Care that can assist your loved one with medication reminders, attending appointments and meal preparation. Find your local Team today.

My husband, wife or parent has dementia & I can’t cope: immediate support options

There are many support services in the UK for those living with dementia and their families. These resources include charities, local support groups for both families and caregivers, healthcare services and professional care agencies that provide specialist Dementia Care.

Social services can arrange a care assessment to determine what support your loved one needs. They’ll work closely with you, social workers or care agencies to ensure you have the right level of support in place. This may include Dementia Care, Respite Care for family caregivers to have regular breaks, or Palliative Care in the later stages of dementia.

NHS & local authority services for Dementia Care

The NHS and local authorities across the UK may provide some of the following services to support people with dementia:

  • Community nurses offer ongoing support at home
  • Day centres provide social activities and respite for carers
  • Home Care agencies, like Alina Homecare, provide professional support in the comfort of home, such as Dementia Care or Respite Care
  • Memory clinics provide specialist assessment and diagnosis
  • Social services arrange care packages and financial help
  • Specialist dementia services for complex care needs

Support groups & charities for families & carers

Community connections are available to support you in feeling less stressed and better prepared to manage the complexities of dementia or Alzheimer’s disease. Here are some options you can consider:

  • Charities help by giving special caregiving sessions to deal with certain problems (e.g. Alzheimer’s Society or Dementia UK)
  • Dementia cafés are good places to meet other people living with dementia and their families in a calm, safe space and share experiences
  • Helplines support family members on how to deal with different behaviours. You can also get information about Respite Care to encourage you to take a break from caregiving duties
  • Online support groups have become increasingly popular, especially for those who are unable to attend in person. They provide emotional support and practical advice from other family members going through similar experiences
  • Outreach programs help people work together, even when times get challenging over the years

Ask us about coping with dementia…

Meet our expert

Our Bristol North Manager, Sally, has years of experience in providing care to clients living with dementia. She regularly participates in fundraising events for local charity, Bristol Dementia Action Alliance.

Below, Sally responds to real life issues from people dealing with the difficulties of a loved one living with dementia:

“My mum has dementia and I can’t cope”

My 78 year old mother was diagnosed with dementia recently. I’m her only child and live two hours away. She’s becoming increasingly confused and sometimes doesn’t recognise me when I visit. Last month, she left the gas on and nearly caused a fire in her home. I feel guilty because I can’t be there everyday. I have my own family and job. The early signs of memory loss were there for months before we got help. Now I don’t know what to do. Should I move her to a care home? Am I a terrible daughter for even thinking that? I’m struggling to be there for my own family and myself because I’m constantly worried about her. What support is available for family members like me?

– Sarah, Daughter, Worcestershire

Dear Sarah,

Your feelings are completely valid and you’re not a terrible daughter for wondering if your mother should go into a care home. 70% of care home residents have dementia in the UK.2 Caring for a parent with any form of dementia is one of life’s greatest challenges. The fact that you’re concerned shows how much you love your mother.

If you haven’t already, contact your local social services for a carer’s assessment. We’ve covered how to find your local authority in this guide so scroll down for more information. They can arrange support services, including community nurses or day centres to give you peace of mind that your mother isn’t alone. Alzheimer’s Society offers excellent resources and local support groups where you can meet other family members facing similar situations.

You could consider hiring an in-home caregiver to support your mother or explore memory care facilities if her needs exceed what can be safely managed at home. A memory care facility isn’t giving up – it’s ensuring she receives specialist care from staff trained in managing dementia.

Maintaining your mental health is crucial. You can’t pour from an empty cup. Seek emotional support through counselling or an online support group where you can find people experiencing the same situation as you. Many adult children find professional help invaluable during this journey. Asking for help is a sign of strength, not weakness.

“My wife has dementia and I can’t cope”

My wife of 35 years was diagnosed with vascular dementia a year ago. She’s only 64. The woman I married seems to be disappearing before my eyes. She has mood swings and sometimes doesn’t recognise who I am. Our relationship has completely changed; we now sleep in separate rooms because she wanders at night. I feel like I’m grieving for someone who’s still alive. Our adult children live abroad and don’t really understand how bad things have become. I’m exhausted from managing her daily tasks and household chores while trying to work. Physical intimacy is gone and I feel guilty for even thinking about my own needs. I love her but I don’t know how much more I can take. What help can I get as a spousal carer?

– Michael, Husband, Surrey

Dear Michael,

Your feelings are entirely legitimate and you’re experiencing what many spousal carers face. The grief you describe is real – it’s called anticipatory grief3 and it’s a natural part of the dementia journey.

Young-onset dementia is a condition that affects close to 42,000 people in the UK who are under the age of 65.4

Get in touch with Alzheimer’s Society’s special young-onset dementia service. They have support groups made for people of your wife’s age living with dementia. They understand the unique problems you have. A lot of these groups now meet online, so help is available no matter where you live.

I would also recommend contacting your GP immediately to request a carer’s assessment through social services. You’re entitled to support, including Respite Care and potentially day trips or day centres for your wife. Alzheimer’s Society provides specific support for carers5, including support groups where you can talk to other carers who understand your situation. As your wife’s primary caregiver, you may also be entitled to financial support such as Carer’s Allowance, which can help with the exhaustion of working alongside caring for your wife.

Consider arranging power of attorney and other legal documents now while your wife can still participate in decisions. A social worker can help coordinate support services and discuss options like memory care facilities when appropriate.

Your emotional needs matter too. Consider joining a support group so you can talk to other spousal carers experiencing the same challenges as you. The family caregiver alliance offers resources specifically for maintaining positive relationships during dementia progression.

If you can, also consider Respite Care. A professionally trained Carer can visit your home and perform some of the tasks that you might be currently doing for your wife. It’ll give you a chance to step away from your caregiving duties and recharge.

Remember, using support services doesn’t mean you’re failing – it means you’re being responsible by ensuring both of you get the best care possible.

“My husband has dementia and I can’t cope”

My husband was diagnosed with early Alzheimer’s disease several years ago at age 69. At first, we managed well but recently his cognitive decline has accelerated dramatically. He can’t manage familiar tasks like dressing or eating without help. Yesterday, he became aggressive when I tried to help him shower, which isn’t like him at all. He was always gentle and kind.

I’m 67 myself and not in the best health. Our son wants us to consider a care facility but my husband made me promise years ago never to “put him in a home.” I feel trapped between honouring his wishes and keeping us both safe. I haven’t had a great time socialising or pursuing my own hobbies in months. I barely sleep because I worry he’ll wander at night. What’s the best way to manage this situation? I feel like I’m losing myself.

– Patricia, Wife, Hertfordshire

Dear Patricia,

Your situation sounds heartbreaking and your feelings are completely understandable. Difficult behaviours like aggression are symptoms of Alzheimer’s disease, not reflections of your husband’s true character. The man who made you promise not to put him in a home couldn’t foresee how the disease would progress.

I would recommend immediately contacting your GP about the aggressive episodes – there may be medications or strategies to help. Request an urgent carer’s assessment and discuss safety concerns with a social worker. Your wellbeing matters too and you can’t provide good care if you’re unsafe or exhausted.

Despite the promise you made to your husband, you are the partner with the decision-making capability now and you must act in both your best interests. A memory care facility with specialised staff trained in dementia behaviours may be the safest option. Alternatively, you could consider an at-home care provider where Carers visit him at home to meet his needs. GOV.UK statistics show that the number of people with dementia over 65 has increased faster than the rate of care home beds available for people with dementia.6 That means it might become more common for people to receive Dementia Care at Home and providers, of which we are one, are equipped to deal with many forms of dementia with our Home Care & Live-in Care services.

Visiting Care may also give you the time you need to focus on your own health and pursue your hobbies. Choosing professional care when you can no longer safely provide it yourself isn’t breaking a promise – it’s a loving decisions that ensures your husband receives appropriate care while preserving your health. You’ve given many years of devoted care; now it’s time to ensure both of you are safe and supported.

“My dad has dementia and I can’t cope”

My 81 year old father has Alzheimer’s disease. I’m the only one of four kids who lives near him; the other three are in different cities and don’t visit often. When they do, they tell me I’m not doing things right but they don’t give real help or money. My sister says I should “just put him in a home.” My brothers act like everything’s fine since I’m there to take care of things. I’m a 45 year old single man. I’m trying to do my job and help my dad at the same time. I feel tired and angry that it’s all left to me alone. How do I get my siblings to help and take on some of this work?

– Mark, Son, Bristol

Dear Mark,

Family tensions about care are sadly very common. We know it’s hard to face both the daily problems you’re coping with plus the feelings that come with them. Let’s try to handle one at a time.

First, set up a family meeting to talk about what your father needs for his care. You can do this on a video call if needed. Bring the right information with you. This means you should know about his daily care needs, the costs involved and what the doctors say about his health in the future. Often, it’s helpful to have a care assessment to support this. Care providers, like Alina Homecare, offer free assessments to guide you in this way. You could then offer clear ideas on how your siblings can help. This could be financially, visiting your father more often or helping to find outside help.

Get in touch with your local authority to set up a carer’s assessment and ask if they have family mediation services. A lot of places give free help through mediation for families who have problems with care. Write down everything about how your father is looked after and what you need too.

If your siblings don’t want to help, try to focus on what you can do. You can look into care options like Respite Care, adult day centres, or other Home Care services. These services offer extra help and enable you to take time for yourself. You may be able to get Carer’s Allowance as extra support and your father may be entitled to Attendance Allowance. This money can help you pay for more support or a professional in-home caregiver.

Think about joining a support group for male carers. There are more of these groups now and they can provide advice and emotional support. Taking care of someone should not rest with just one person but at time, you may feel like it does. To look after your own wellbeing, make sure to use any support services that are available to you.

“My grandmother has dementia and I can’t cope”

I’m a 34 year old mum with two little children, aged five and eight. I’m also looking after my 89 year old grandmother who has vascular dementia. My grandmother raised me up after my parents passed away, so I feel that I have to be there for her now. But I find it hard to keep up with everything

I see that my children start to feel unhappy about the time I spend with my grandmother. It gets worse when she has tough days and becomes confused or upset. My husband works long hours; he helps out when he’s able but I’m still the one who cares for everyone the most.

I feel tired trying to meet everyone’s needs. My children need their mum, but I can’t just leave my grandmother. I need advice on how I can care for both the old and young in my family without becoming overwhelmed.

– Emma, Granddaughter, Somerset

Dear Emma,

You’re in one of the toughest caregiving roles, known as the “sandwich generation”. It’s normal to feel like you’re being pulled in many ways at once. A lot of people feel the same way you do.

First, keep in mind that good care doesn’t mean you need to do all the work by yourself. You should get in touch with social services right away to ask for a care assessment for your grandmother. Tell them about your life as a family carer, especially that you have young children. They may give your family top priority for support services.

Your can look into adult day centres for your grandmother. The centres could give her a place to have social time and take part in a variety of activities. At the same time, you get time to spend with your children. Many places also have activities for the young and old to do things together – this could be good for your children, your grandmother and you.

It sounds like your children are at an age where they could help you with your grandmother’s care. They could take part in easy things, like looking at old photo albums with her or preparing a drink for her. This may help them know more about what’s going on and feel like they’re part of it which may help them to not feel left out or upset.

Consider Respite Care when you need a regular break, even if it’s only for a few hours each week. Use this time to spend with your children. Don’t worry about household chores during this time, just focus on quality family moments together. It’s important that your children feel they’re still a top priority.

Speak to other people who are also “sandwich generation” carers by joining online support groups. You may find helpful tips from other people who face the same problems you do.

Remember, you can’t help others if you feel drained. If you take care of yourself first, then you can better look after the people around you.

“My husband has dementia and has become aggressive”

My husband and I have been together for 40 years. About 18 months ago, he was told he has Lewy body dementia. Lately, he’s started to get rough with me, mainly when I help him with personal care. This happens when I try to bathe him or change his clothes. Just last week, he hit me while I was helping him change. He was always so gentle before. This isn’t the man I married. I feel scared of him but I also feel bad for feeling that way. I’m 72 years old and don’t have the strength I once did.

Our adult children live far from us. They don’t believe me when I tell them how he acts. They think I’m making things sound worse than they are. I still love him but I’m afraid. I don’t know if I should think about a care home for him now. A part of me feels like I would be letting him down after all we’ve been through together. I just don’t know what to do.

– Margaret, Wife, Dorset

Dear Margaret,

Your safety comes before anything else. This isn’t something to argue about. When someone with dementia acts out of character, it’s a part of the illness, not something they mean to do. But you shouldn’t have to hurt because of it.

Get in touch with your husband’s GP right away to let them know about the aggressive episodes. The doctor may have medication or other ways to help handle these behaviours. Lewy body dementia can make people see things that aren’t there and feel confused, which can lead to anger. A doctor may be able to help make things better.

For his safety and your own, don’t try to help him with Personal Care if that’s what’s causing your husband to get upset. Step away and give him some space. Wait a while, then try again – or you may want to consider hiring a professional Carer who’s trained in managing these symptoms of dementia.

In a care home, memory care units have trained staff who know how to work with people who may get angry or upset. They’re trained to keep everyone safe. If you decide to move him there, you’re not leaving him behind; you’re making sure both of you get the right care. After being married for 40 years, you’ve done more than most people get to do.

“I’m disabled and caring for my wife with dementia”

I’m 68 years old and have used a wheelchair for 15 years because of multiple sclerosis. My wife, Jenny, is 66. She found out she has Alzheimer’s disease last year. Now, I find it hard to give her the help she needs as I’m dealing with my own health problems. Daily tasks like helping her take a shower or stopping her from wandering at night feel impossible for me now. Social services tell us they’re too busy to help much and we’re left waiting for support.

I feel like I’m not able to be a good husband as I just can’t keep her safe or care for her the way I want to. We don’t have much money saved up and we can’t pay for private care. Jenny gets mixed up about my disability too – she sometimes asks me why I won’t stand up and walk – and I feel even more helpless. What can people do when both partners need care like us?

– Robert, Husband, Gloucestershire

Dear Robert,

Your situation needs immediate help from social services. You should urgently get in touch with them again. Ensure you tell them you’re a disabled spousal carer. This can help speed up your assessment with the Care Act 2014. Ask for a joint assessment for you and your wife, Jenny.

Contact your local Carers Centre right away. Many of them help disabled carers and can speak to social services for you. Tell them this is a crisis and be sure to say there are safety concerns.

Look into Direct Payments – with this, you can get money to set up your own care. It might be more flexible than waiting for what the council offers, and you could even hire carers who can help both you and your wife at the same time.

For immediate help, contact Age UK for emergency services. Ask your GP to send Jenny to the memory clinic for a check up. Get in touch with disability charities for help with equipment like grab rails and monitoring devices. These things can make life easier. Look into helpful tools like movement sensors to help with her wandering at night.

Regarding money, both of you may be eligible for financial support. You both may be entitled to Attendance Allowance or Personal Independence Payment and you may also be entitled to Carer’s Allowance because you care for Jenny.

Don’t think you’re not needed – love is about more than just taking care of someone’s body! Being there for Jenny and standing up for her needs matters so much. You’re doing a great job during a tough time and what you do means a lot.

“My mum has dementia and I’m struggling”

I’m 42 years old and a single professional working as a nurse. My mum, who is 74 years old, lives with me. She has moderate dementia. I try my best to care for her, but 12-hour work shifts make it very difficult. She keeps waking up and wandering at night so I don’t get much sleep between my shifts because of this.

My boss is kind and understanding, but I’ve used all my annual leave on her doctor appointments. I can’t work less or take unpaid leave. I have a mortgage, and I pay for everything for both me and my mum. Because I’m so tired, I’m starting to make mistakes at work; this makes me worry because I don’t want it to damage my nursing registration. A care home for my mum would cost more than my whole salary; I simply can’t afford it.

I feel trapped. I feel like I’m not managing well at home or work. How do other people who are working carers get by?

– Helen, Daughter, Essex

Dear Helen,

As a healthcare professional, you know how important it is to deal with this problem before it can harm your job or your registration. Your employer should have policies for family carers. You should ask to meet with HR and talk about flexible working.

Get in touch with ACAS (Advisory, Conciliation and Arbitration Service) to get free advice about your rights at work if you’re a family caregiver. You may have the right to flexible working hours, carer’s leave (though often unpaid), time off for emergencies and possible career break options.

For immediate help with your mum, you can get in touch with your local council if you need Emergency Respite Care. Look into NHS Continuing Healthcare – your mum might get care that’s fully paid for. You could also think about having a Live-in Carer who works times that fit around your schedule.

Join online support groups for people who work and care for someone at the same time, especially as you work in healthcare. A lot of nurses deal with the same problems and often share tips that help with daily issues.

When it comes to costs, you can look into Deferred Payment Agreements. With this, the council will pay the care home fees up front and will get the money back later from your mum’s estate. This can help make residential care possible for a short time.

Your job is important, not just for the money but also because there’s a big need for skilled nurses. Taking care of yourself and your job is not selfish – it ensures you can keep helping your mum for a long time.

“My wife doesn’t speak English and has dementia”

My wife, Rosa, moved to the UK from Italy 45 years ago. She didn’t pick up English very well and I mostly helped translate for her. She’s now 78 and has dementia. She’s starting to speak only in Italian again, which means the healthcare staff here can’t always communicate with her and she gets very upset when she goes to appointments. Our children know some Italian but they’re busy with their own lives. I’m 80 myself and it’s hard for me to speak up for her and look after her at the same time. The local dementia services don’t seem able to help people who don’t speak English. Rosa is always saying she wants to “go home” to Italy; this hurts me, as this place has been home to both of us for so many years. I feel lost about how to get proper help for her when there’s this big language barrier standing in the way.

– Giuseppe, Husband, London

Dear Giuseppe,

Language regression is often seen in people with dementia. As the condition worsens, they can start to use their first language more often. This is not unusual or rare and there are services available that can help with this.

Get in touch with the NHS’ interpretation services right away. The law says they must give you interpreters for medical appointments. Many places have people who help with healthcare for Italian-speaking patients, especially for older people.

Look for support groups that match your culture; in London, you can find several Italian community services. They have dementia support groups spoken in Italian that you can get in touch with.

When Rosa says she wants to “go home”, she may be saying she needs comfort and a feeling of what she knows best, not that she really wants to travel. To help her feel more comfortable, make sure she’s around things she knows from Italy. You could play Italian music or radio stations, show her photos of her childhood in Italy, find Italian television shows and provide her with traditional Italian foods. Consider hiring a Care Assistant who can speak Italian. You can find one by looking for agencies that have experience with multicultural care.

Get in touch with your local council’s adult services. They should help you by offering translation services. In many places, there are now special programs for older people from different cultures who have dementia. These programs aim to give the right support.

“My teenage children are struggling with their grandfather’s dementia”

My father is 79 years old and lives with me and my family. He has moderate dementia. My children, Jake, who’s 16 and Lucy, who’s 14, are finding it hard to deal with his condition. Sometimes he gets confused and calls my daughter by the name of his late mother. He often asks the same things repeatedly and sometimes has toileting accidents. Because of this, Jake feels embarrassed to invite his friends over. Lucy feels hurts when grandpa can’t remember what they spoke about the day before. They both used to love spending time with him but now I see them trying to stay away, which makes me feel very sad. They’re also scared about whether dementia could run in our family and if it might happen to me or them one day. How can I help my teenagers understand what’s happening to their grandfather and let them feel safe with their feelings? I want to look after their emotional health while they go through this.

– David, Son, Hampshire

Dear David,

Teenagers can find it hard to deal with dementia in the family as it can make them feel confused about who their loved one is and if things will ever be the same again. Your children are sad about the grandfather they remember. At the same time, they’re trying to get used to how he’s changing now.

Start with learning more about dementia. For information, reach out to Alzheimer’s Society or Dementia UK. They’ll have many helpful resources for kids and young people to explain what dementia is in a way that’s easy to understand. They also provide information about family history and whether dementia can be passed down. Most types of dementia are not directly passed from parent to child, so this might help your children feel better.

Create opportunities for positive interactions, such as:

  • Looking at photo albums together: your father may remember old memories and tell your children about his experiences
  • Playing music from his childhood that might bring back good memories or positive responses
  • Involving your children in easy activities with their grandfather, like gardening, cooking or walking
  • Sharing happy stories about their grandfather before he got dementia
Talk to them about their worries. Let them know it’s safe to talk about their feelings with you. This might also help them to explain the situation to their friends, so your son can feel comfortable inviting them over. For example, they could say, “Grandpa has dementia and that means his memory isn’t as good and he often gets confused, but he’s still the same person who loves us.” Many teenagers will find that their friends understand this more than they may think.

Consider family counselling to help everyone deal with grief and the changes happening in the home. Your local CAMHS (Child & Adolescent Mental Health Services) can give support to teenagers who are facing illness in the family, which could be beneficial for their mental health.

Most importantly, let your children keep up with what they usually do and stay close to their friends. They need time and space where they feel like normal teenagers, not always having to be carers or family supporters.

The fact that your children once loved their grandfather a lot shows they can feel close to him again. With your help and patience, they can find ways to connect with him.

A dementia diagnosis can be tough for both the person who’s been diagnosed and their family. When someone develops dementia, it can be a difficult change that feels hard on everyone involved. It’s normal to feel a mixture of emotions but it can help to talk about how you feel by joining a support group and learning from people with similar experiences. Find ways of coping that work for you and your loved ones.

How relationships change

A diagnosis of dementia can sometimes change the way family members act and support each other. Initially, you may feel worried and overwhelmed because you don’t know what to expect after the diagnosis. A shift in your loved one’s health and behaviour can put pressure on intimate relationships. Dementia is one of the major causes of disability and dependency among older people globally7, and family members often take on new roles as primary caregivers. It’s an emotional time, with sadness and even grief that your loved one may not be the same person.

Coping strategies for family members

Adjusting to a loved one’s dementia diagnosis can take a toll on you. It’s normal to feel sad and overwhelmed. Support groups are a good resource during this time, as they allow families to speak to people who understand what they’re going through by sharing stories and experiences.

There are also support services for family caregivers, such as Respite Care; this is where private carers or professional care agencies step in to provide cover while you take time off from your caregiver role. In turn, this can benefit your mental and physical health by lowering stress levels and reducing the risk of getting too tired and potentially experiencing carer burnout.

Communicating with your relative after diagnosis

After a dementia diagnosis, talking and connecting with your loved one may feel difficult. Memory loss and changes in a person’s behaviour can make it hard for them to join in conversations. You can help by speaking to them in a calm and gentle way, giving them plenty of reassurance and letting them know that you’re there to support them.

Allow your loved one to be involved in their own medical care decisions; avoid taking charge without considering their feelings and wishes. Following their diagnosis, your loved one may need time to reflect and decide to do things differently while they still have capacity. You may want to incorporate memory aids to support them in their daily lives with everyday tasks, such as placing visual reminders around the home or having their favourite objects on display for comfort.

Communication skills become even more important as the condition progresses; eye contact and gentle touch can often communicate more than words, so observe nonverbal cues and facial expressions to help you understand your loved one.

Feeling guilty

It’s normal to feel guilt when you care for a loved one who has dementia or Alzheimer’s disease. You may feel like you’re not doing enough to support them, or there may be times when you feel a lot of resentment over what they’re going through. Feeling guilty is a normal reaction but don’t let it consume your life. If necessary, find help and support from a mental health professional who can help you understand your thoughts and feelings and provide coping mechanisms. Support groups are also a valuable resource where you can speak to people who are facing similar challenges. If you can, talk to other family members to lessen the burden and support each other.

Grief & loss

If you’re a spousal carer, you may feel a sense of grief or loss when you see changes in the way your loved one acts. As the condition progresses, your loved one may begin to forget you or memories that you’ve shared may fade, which can be difficult to accept. You could try to change your perspective and see things more optimistically; instead of focusing on what you’ve lost, think about the time you still have left with your loved one and the privilege of caring for them when they need you most.

Feeling angry

Anger is a natural emotion to feel when you see changes in your loved one’s behaviour due to dementia or Alzheimer’s disease. As your loved one’s personality changes, it’s important to remember that their actions are a result of the disease, not because they want to cause harm or offense. As a caregiver, joining a support group and speaking to people in similar situations can help you feel less alone and remind you to be kind and patient with your loved one during this challenging time.

Asking for help

Sometimes, being a caregiver can feel lonely and isolating so it’s essential to take time for yourself and accept help to avoid caregiver burnout. You don’t need to handle everything on your own! Support groups and other support services, such as Respite Care, are available to help you. Respite Care allows you to take a short or long term break for your mental and physical wellbeing while a professional carer steps in to cover your duties. If you need support caring for a loved one, contact Alina Homecare to discuss your options or find your local Care Team.

Elderly man caring for his elderly wife

Emotional support

My husband/wife has dementia and I can’t cope

Dealing with a husband or wife with dementia can be incredibly difficult. You may feel overwhelmed and hopeless at times. You may grieve the intimate relationship you once had as their dementia progresses. TV presenter Fiona Phillips and her husband Martin Frizell have been in the news recently, highlighting these challenges. Fiona Phillips is only in her 60s and has early-onset dementia, yet her husband says she no longer enjoys many of the things she used to, like wearing nice clothes or cooking.8 Seeing your loved one change is difficult.

If you need support, don’t be afraid to ask for it. Caregiver stress, or carer burnout, is common among spousal carers; long days of caring with little interaction from others can take a toll on your health. Respite Care is a great way to make sure your loved one is being cared for while you take a break for your own emotional needs. Taking care of yourself is not selfish; it may ultimately help you to support your spouse better.

You can also support your spouse by learning about the symptoms of dementia to understand how their daily life may begin to change and what you adapt for them. For example, they may need to have their final meal of the day earlier so they can go to bed earlier.

If you feel comfortable doing so, talk to your partner openly about their needs and what you can do to support them. Early in their diagnosis, they may feel uncomfortable or embarrassed having to rely on you for extra support if this isn’t something they’re used to in your relationship.

  1. Accept that your relationship will change
    Adjusting to life with dementia is challenging, especially if you become the main carer for your partner. A 2024 Carers UK study showed one third of people didn’t realise they were an unpaid carer for a year.9 There will be changes you need to make as memory loss reshapes how you spend time with your partner. You may notice them behaving differently and you’ll need to adjust to this.

    The intimate relationship you once shared may also evolve. Physical intimacy might decrease as their memory fades. Some couples find comfort in separate bedrooms as sleeping patterns change, but don’t think that this diminishes the long history or love that you share.
  2. Learn about dementia
    Learning about dementia can increase your understanding of how your loved one’s mind works. There are many different forms and stages of dementia, so researching it can help you to prepare for what’s to come and how you can adapt to meet your loved one’s changing needs. Understanding the different types of dementia will help you to provide better care and support to your partner. Vascular dementia, Lewy body dementia and frontotemporal dementia all have different symptoms and progression patterns. Early Alzheimer’s disease may also present differently from advanced dementia. You may want to join a local support group for guidance and reassurance.
  3. Get a formal diagnosis
    Receiving a formal diagnosis of dementia is important for you and your spouse to know what you’re dealing with and what challenges can arise. A medical professional will conduct tests to assess mild cognitive impairment and diagnose the type of dementia your partner has so you can get the appropriate care. An early diagnosis can help medical professionals monitor dementia symptoms and provide appropriate treatment before a person’s health deteriorates further.

    A primary doctor may make the initial referral to a specialist. The dementia testing process can include blood tests, brain scan procedures and cognitive assessments. There is no single test for dementia, so medical professionals use multiple approaches for an accurate diagnosis.
  4. Recognise that their behaviour is not intentional
    Memory loss can lead someone to act in different and strange ways. Difficult behaviours like aggression, delirium, paranoia or wandering are symptoms of the disease, not choices.10 Inappropriate behaviours often stem from confusion or discomfort. Knowing this can help you work through the difficult emotions that come with progressive dementia, and when you see their actions as part of the condition, you feel more compassion and less anger towards them.
  5. Learn how to identify their needs & respond accordingly
    Understanding what your spouse needs can help you to provide better care as their condition progresses. The way you communicate with your spouse may change. When speaking, maintain eye contact so they can follow what you’re saying. Speak slowly, clearly and use simple, easy to follow words. Avoid background noise so they don’t feel overstimulated.

    Be patient with them when they’re trying to communicate with you and don’t rush them; they may take longer to speak as they struggle to recall the correct words. Watch for nonverbal cues and respond to their emotional needs even when they can’t express them clearly. Your spouse may struggle with activities of daily living, so support them by breaking down complex tasks into simple step by step tasks.
  6. Respond with love & kindness
    Create a loving, kind and safe place for your spouse as they learn to live with the symptoms of dementia. A gentle touch, a warm smile or calm words can help take away some of the sadness and frustration they feel as their memory fades. Remembering that memory problems are out of their control will help you to be more caring and patient. Maintaining a positive mood despite the challenges will help to create a better environment for you both. Small gestures of unconditional love can make a significant difference in their daily experience.
  7. Cherish the past
    As your spouse’s memories fade, hold on to joyful times that you shared in your relationship. When things get tough, reminiscing about good times and experiences you shared may bring you comfort and joy. Talk to your partner about your favourite memories with them; if they can’t remember, it may bring them joy to hear about it from you. Photographs, music and familiar objects can trigger positive memories, even in the later stages of dementia.

    Even when your spouse changes significantly, the love you share transcends the symptoms. Focus on the positive relationship aspects that remain and remember that your unconditional love provides comfort even when they can’t express it.
Daughter preparing food for her elderly father who is reading a newspaper

Diagnosis support

My parent or spouse has dementia – what’s next?

Getting a dementia diagnosis can feel overwhelming. It’s normal to feel lost or not know what to do. You may have noticed memory problems and other changes and are wondering how to get an official dementia diagnosis. A dementia test can be conducted to determine if your loved one has dementia and what type it may be. Initially, you could contact Alzheimer’s Society or Dementia UK who can provide about Alzheimer’s disease and different forms of dementia.

A support group in your area may also be helpful to you. Such groups often include people in a similar situation to you or who have experience dealing with it; they give advice and tools to help with the obstacles you may be facing caring for someone with dementia. They often share ideas about how to care for someone, explain what signs to look for and inform you of what steps to take next. Joining a support group or calling a support line can make things feel less overwhelming for you and your loved ones as you deal with dementia.

Social Workers or Care Workers can also provide valuable guidance during this challenging time. They help connect families with support services and can arrange a care assessment to determine the kind of help and support you may need. This is particularly important for family caregivers who may need short breaks or Respite Care.

Recognising the early signs of dementia in a loved one

Do you suspect someone in your family may have dementia? It’s important to find out in the early stages of dementia. You may notice common symptoms, such as memory loss, trouble doing daily activities and changes in their daily activities and changes in their usual behaviour.

Seek guidance from mental health professionals to determine if your loved one has dementia. Look out for memory problems and observe if they have any small changes in their usual daily routines. By looking for patterns and talking to people who specialise in dementia or Alzheimer’s disease, you can get the right support and ultimately make better choices for their care.

Older adults may experience hearing aid issues that can mimic symptoms of dementia. It’s important to rule out environmental factors before assuming cognitive decline. A memory clinic can conduct proper dementia testing, such as blood tests or brain scan procedures, to provide an accurate diagnosis.

Common symptoms to look for in loved ones

You can spot symptoms of dementia in your loved ones by looking for memory problems; for example, they may start to forget things or lose track of what they’ve previously talked about. These are the most obvious warning signs. It’s also important to observe personality changes; for example, they may get angry more often or experience mood swings. There may be instances where they choose not to take part in group activities like they used to, which could also be a symptom of dementia.

As a family caregiver, you may notice repeated signs of memory loss, such as your loved one asking the same question many times or getting lost in places that should feel familiar to them. This can make things like having a conversation or doing their usual daily activities difficult.

Also, stay alert to any physical changes you may see in your loved one. For example, a person with dementia or Alzheimer’s disease may stop caring for their body and cleanliness, they may lose interest in hobbies they used to enjoy and start to feel restless or have trouble sitting still. Behavioural changes can show early signs of dementia. If you notice them, it’s important to act early and speak to a medical professional to help you understand what to do next.

When & how to seek a professional diagnosis

If you notice any of the symptoms of dementia or changes in behaviour and memory problems, write them down as and when you notice them. These notes will help doctors and other medical professionals with their diagnosis of dementia. It will also help them to make an appropriate care plan that fits your loved one’s needs.

Initially, speak to a medical professional about your concerns; they may discuss the different forms of dementia and refer you to a specialist to assess your loved one’s cognitive function. Early diagnosis leads to better outcomes and more time for future planning.

Download leaflet

Request a copy of our Dementia Care leaflet.

Lifestyle support

Practical tips for daily Dementia Care at Home

Providing a safe environment at home is essential for someone living with dementia or Alzheimer’s disease to ensure they feel as safe and comfortable as possible. As their memory deteriorates, you can help make life easier by using memory aids, such as calendars or sticky notes, around the home. If you’re living with elderly parents, you may need to make some adjustments around the home to make it safer for them to move around and prevent slips or falls. You could install handrails in areas that are not well lit, like hallways or staircases, or install a handrail in the bath or shower. You may also need to change the way you do household chores and routines as your loved one’s needs change over time. For example, they may require dinner earlier in the evening as their sleeping habits change and they go to sleep earlier.

If needed, support services can visit your home to assess what changes might help. They can provide professional advice about removing potential hazards and give tips that fit each stage of progressive dementia, particularly for elderly people who may have existing safety concerns about mobility.

Encouraging independence & meaningful activities

Family caregivers must find a good balance between providing help and allowing their loved one to maintain independence. You could think about their hobbies or other activities they can take part in that match the stage of the disease. For example, some people enjoy knitting, crafts or gardening but these may no longer be possible as their dementia progresses. Hobbies can keep your loved one busy and improve their daily life. Being able to do even simple daily tasks like setting the table or folding laundry can help your loved one feel good about themselves and give them a sense of purpose. Day trips to familiar places can provide enjoyable experiences and be beneficial for their mental health.

Changes in communication & behaviour for people with dementia

Alzheimer’s disease can change the way people talk and share what they feel. You may notice that they become confused or agitated now and then. Memory loss can make it difficult for someone to communicate the way they did before, so be patient and listen carefully. It may help to use the things around them, like family photographs or a special object, to initiate a conversation. Simple words work better when communicating, so avoid giving multiple instructions at once. Break down daily tasks into smaller steps.

Tips for a healthy & active lifestyle for people with dementia

A healthy and active lifestyle may be beneficial for people living with dementia. Although it hasn’t been shown to slow down or prevent dementia from progressing once a person already has the condition, it may improve some aspects of memory.11

Physical activity can improve blood supply and nutrients to the brain, which can help with thinking skills and memory. Maintaining strong muscles and flexible joints can also help with mobility, allowing your loved one to do things for themselves like dressing, cleaning and cooking. It could also improve hand-eye coordination as the hands and eyes work together to complete tasks like eating, tying shoelaces or buttoning clothing. These small tasks could help your loved one to maintain independence and a better quality of life.

Psychological benefits of exercise include improving mental ability, higher confidence and self esteem, and reducing the risk of depression.

Encourage your loved one to take part in activities such as walking, gardening or dancing to keep their body moving. There are other activities which are believed to be beneficial for people living with dementia, such as knitting and crocheting12, making music13 or attending a dementia café. You can explore different options in our activities for elderly people guide.

Help with eating & drinking

Make sure your loved one has good eating and drinking habits to ensure they’re getting the right balance of nutrients. It’s believed that small meals at the same time each day can be easier to manage than larger meals three times a day. If you can, involve them in creating a meal plan of their favourite foods and in preparing and creating their meals. If you’re struggling for ideas, read our meals for elderly people guide or download our free recipe book.

Our Home Carers can support your loved one with preparing meals or shopping assistance. They can provide gentle reminders to take medication on time or stay hydrated and eat regularly throughout the day.

Help with incontinence & using the toilet

Managing incontinence for people who have dementia or Alzheimer’s disease can be challenging. The most common type of incontinence for people living with dementia is an overreactive bladder, which causes the feeling of a sudden and intense need to urinate, or frequent urination. Another common symptom in people with memory loss is confusion. For example, your loved one may be unable to find or recognise the toilet which may cause them to urinate in inappropriate places, such as a bin that they’ve mistaken for a toilet. Additionally, they may be unable or forget how to use the toilet, like struggling to undo clothing before reaching the toilet. Therefore, you may need to consider incontinence products, such as absorbent pants or bed pads.

What benefits am I entitled to when my husband, wife or parent has dementia?

If your loved one is diagnosed with dementia or Alzheimer’s disease, it’s good to manage legal matters early. A power of attorney allows a person your loved one trusts to make choices about their medical, financial and legal matters. If your loved one has a progressive form of dementia, they may lose the capacity to make their own decisions, so they may want to consider something called an advance decision, which lets others know what medical care they want during the later stages of dementia. You may wish to seek professional advice from a financial advisor to help you understand benefits and planning for future care costs.

Please note: The summary of options provided below is for information purposes only. Alina Homecare is not authorised to provide legal advice. It’s recommended you seek professional advice from a registered advisor before considering any of the following options:

Power of attorney

Caring for someone with dementia is not easy; you may need to make decisions on their behalf as their memory and mental capacity decline. A lasting power of attorney (LPA)14 is a legal document that allows someone to appoint a trusted person (or persons) to help them make decisions on their behalf.

There are two types of LPA:

  1. Health & welfare
    This gives someone power to make decisions on their behalf about things like daily routine (such as washing, dressing and eating), medical care, moving into a care home, or life sustaining treatment. It can only be used when the person is unable to make their own decisions.
  2. Property & financial affairs
    This gives someone power to make decisions on their behalf about money and property, such as managing a bank account, paying bills, collecting benefits or a pension, or selling their home. It can be used as soon as it’s registered, with the person’s permission.

Advance decision

As dementia progresses, your loved one may no longer be able to make their own decisions about their medical care. An advance decision15 (also known as a living will) is an opportunity for them to make decisions about refusing medical treatment at some time in the future; it’ll let their family and healthcare professionals know their wishes about refusing treatment if they’re unable to communicate them.

An advance decision can only apply if your loved one has the mental capacity to make the treatment decision for themselves. If it’s correctly made, their treatment refusal cannot be challenged by others and must be followed by healthcare professionals.16

Writing a will

Preparing a will17 is important as we grow older and our responsibilities change but especially for people who may be nearing the end of life. A will lets you decide what happens to your money, property and possessions after your death.

If your loved one has specific wishes about their estate or medical care, preparing a will can provide peace of mind and clarity during a difficult time. When writing a will, it’s recommended to seek legal advice to ensure the will is legally valid and cannot be disputed; this can prevent disagreements between family members after their loved one has passed.

Guardianship/conservatorship

Guardianship protects the interests of those who are unable to care for themselves, such as incapacitated adults. Legal guardianship refers to the legal authority granted to someone to care for another person’s personal and property interests. If your loved one’s dementia is so progressive that they’re unable to make decisions due to mental incapacity, guardianship can give you peace of mind knowing that you have legal authority to make decisions on their behalf for their safety.

Son reading a letter while his elderly mother is in the background knitting

Financial support

There are many different types of help available, including financial support, Home Care options and other support services. What benefits you’re entitled to may depend on the kind of diagnosis your loved one has, as well as your current living situation, such as how much money you earn or if you’re their primary caregiver. As a family caregiver, you may be entitled to carer discounts and other financial support. To find out what help is available locally, you can talk to your local authority for more information.

Please note: The summary of options provided below is for information purposes only. Alina Homecare is not authorised to provide financial advice. It’s recommended you seek professional advice from a registered financial advisor before exploring some of the following options:

Carer’s Allowance

Carer’s Allowance18 is a taxable benefit you may be entitled to if:

  • You’re 16 or over
  • You spend at least 35 hours a week caring for someone, including helping with washing and cooking, taking them to medical appointments, helping with household tasks like managing bills or shopping
  • You’re not in full time education or studying for 21 hours a week or more
  • Your earnings are £196 or less a week after deductions

If you’re not eligible for Carer’s Allowance, you may be eligible for Carer’s Credit19 instead; you must be aged 16 or over, under State Pension age, and looking after one or more people for at least 20 hours a week.

Attendance Allowance

Attendance Allowance is a state benefit that helps with the extra costs of living with a disability severe enough that you need someone to help look after you. If your loved one is State Pension Age (65) or above and has a physical or mental disability or a health condition, they can claim for Attendance Allowance.20 If you have power of attorney, you can apply by post on their behalf.

The eligibility for Attendance Allowance is:

  • A physical or mental disability, including sight or hearing impairments, or a health condition such as dementia
  • The disability or health condition is severe enough that they need care or supervision for their own safety
  • They’ve needed that care or supervision for at least six months

Attendance Allowance is not means tested so your loved one’s earnings or any savings won’t affect how much they receive. However, it’s paid two-weekly at two different rates and the rate they receive will depend on the level of help needed.

NHS Continuing Healthcare

The NHS Continuing Healthcare21 scheme is a package of support provided outside of a hospital to adults with complex health needs. It’s arranged and funded solely by the NHS.

The scheme isn’t dependent on specific diagnoses or conditions. Instead, eligibility is determined according to the following criteria:

  • What help is needed
  • The complexity of your loved one’s needs
  • Intensity of your loved one’s needs
  • Unpredictability of your loved one’s needs, including any health risks if the right care isn’t provided

To check eligibility, your loved one must be assessed for NHS Continuing Healthcare by a team of healthcare professionals, known as Integrated Care Boards. If your loved one’s needs change then their eligibility for NHS Continuing Healthcare may also change.

Personal Independence Payment

Personal Independence Payment (PIP)22 is a state benefit available to people living with a long term physical or mental health condition or disability. It’s available for people between 16 and State Pension Age (65) who have difficulty doing certain tasks or getting around because of their condition.

There are two elements to PIP and your loved one may be able to claim one or both:

  • Daily Living: if they need help with daily tasks, like eating and drinking or washing and dressing
  • Mobility: if they need help going out because of physical, sensory, mental or learning difficulties

Having a long term illness or disability can make everyday life more difficult and affect income. For instance, if your loved one had to give up work or reduce their working hours then PIP gives them extra money to help pay for things.

Discover the cost of Dementia Care

Our Dementia Care provides your loved one with professional dedicated and compassionate support in the comfort of home. We’re competitively priced, without compromising on quality. Learn more about our Dementia Care costs.

Dementia Care from Alina Homecare

Our Alina Homecare Academy Training Manager, Karen, has over 25 years’ experience working in social care. Starting her career as a Care Coordinator and working up to Registered Manager, Karen has experience delivering compassionate care and understanding the personal needs of clients and their families.

Working with Alina Homecare for over five years, Karen uses her experience and expertise to train our Care Teams to deliver high quality, person centred care. With her extensive understanding of specialist conditions, such as dementia, Karen passes her knowledge on to others to ensure they’re delivering the best possible care with the right tools and information.

If you meet one person with dementia, you’ve only met one person with dementia, because absolutely everybody is different. We teach our Care Teams the common symptoms of dementia, but it’s more important to teach them how to manage the symptoms as they can appear differently in every individual. No person’s experience with dementia is the same.

At Alina Homecare, all our staff receive basic dementia training in their induction training, but we also have a specialist, standalone course that broadly covers dementia, the different types, symptoms and how to manage these. We delve into which parts of the brain dementia may affect and even explore the rare types of dementia and the differences they make.

For family members facing the challenges of a loved one living with dementia, it may be reassuring to know that, although a person with dementia may forget someone’s name or face, they may not forget how someone made them feel – those feelings are harder to lose.”

Quick questions

What support is available for dementia carers? What financial help is available for families?

Families who are caring for someone with dementia may be entitled to financial assistance. This may be Carer’s Allowance, Attendance Allowance or help from your local authority. Local authorities may also support you in paying for Home Care.

How do I manage challenging behaviours in my loved one with dementia?

It can be difficult to help someone you love who’s exhibiting challenging behaviours. Inappropriate behaviour can sometimes stem from unmet needs; this may indicate they’re in pain, hungry or confused. Try to stick to the same daily routines. If you can see they’re getting frustrated, keep calm and try to gently turn their focus to something else. Try not to argue or retaliate. If you’re worried about their behaviour, seek professional help from specialists trained in managing behaviour changes from dementia.

When should I consider professional or residential care?

If you’re caring for someone with dementia or Alzheimer’s disease, there may come a time when it gets too difficult or unsafe to manage on your own. As a family caregiver, you may feel tired or burnt out and therefore unable to meet their daily needs. If this is the case, you may want to consider other forms of care, such as specialist Dementia Care or Respite Care, to give yourself a break and ensure your loved one’s needs are continuously met.

If the time comes when it’s no longer safe for your loved one to stay at home, you may need to consider residential care. Advanced dementia often requires specialised memory care facilities with trained staff members. The later stages of dementia may also require Palliative Care to make them as comfortable as possible. Consider professional care when safety concerns outweigh the benefits of keeping your loved one at home in your care.

Can people with dementia still make legal decisions?

Yes, it’s possible for people with dementia to still make their own legal choices, especially when they’re in the early stages of dementia. As time goes by and the dementia progresses, this may no longer be possible. You may want to get a professional assessment of their decision-making capability and address legal decisions while the person can still participate. Important documents like power of attorney, advance decisions and wills should be prioritised to ensure you meet their wishes.

How can I look after my own wellbeing as a caregiver?

As a family caregiver, it’s important to prioritise your own emotional needs as this will ultimately make you a better carer. Take time for yourself and practice self care. To prevent carer burnout or exhaustion, reach out to support groups if you feel like you need help and try to maintain an active lifestyle for your health. You can explore Respite Care services, such as those offered by Alina Homecare. A professional carer will take over your duties while you take a break for continuity of care.

How can I cope with my spouse having dementia?

Coping with a spouse who has dementia can be tough. Your relationship may be different and their behaviour towards you may also change. It may help to learn more about progressive dementia to increase your understanding and prepare yourself for what’s to come. Be compassionate and gentle to your partner; listen to them patiently and answer with love and kindness.

What benefits can I claim if my spouse has dementia?

If your spouse has been diagnosed with dementia, there are several ways you can get help. Carer’s Allowance and Attendance Allowance may give your family some financial support. Contact your local authority to discuss what other help is available in your area, including a care assessment for your partner.

What’s the best living situation for someone with dementia?

Someone living with dementia should be in a safe and comfortable place. They may prefer to be in a familiar environment and therefore remain at home if it’s possible and safe to do so. Other options include assisted living or residential care. Consider factors like safety concerns, level of cognitive decline, availability of family members to provide support and their quality of life. Memory care facilities specialise in Dementia Care and have support staff trained in manging dementia symptoms.

What should I do if a person with dementia is sleeping a lot?

A person with dementia experiences physical changes in their brain because of their condition; these changes can affect how often and how well they sleep. Therefore, they may have difficulty sleeping at night and may sleep more during the day.23 Over time, excessive sleeping may make the symptoms of dementia worse.

Having a consistent routine during the day and at bedtime can help when a person’s body clock doesn’t work as well as it should. Doing regular activities at the same time each day – for example, listening to the radio after breakfast or going for a walk after lunch – will provide a familiar routine that helps the person to make sense of the time.

Additionally, doing enjoyable and interesting activities during the day may help to reduce tiredness or sleepiness. Physical activities, such as walking and light gardening, are particularly good for improving quality of sleep. Encourage your loved one to do these activities for at least 20-30 minutes during the day, several times a week, if possible.

What should I do if a person with dementia or memory problems is refusing help?

It’s common for someone with dementia to refuse help from others; they may not want to acknowledge that they’re experiencing issues with their memory or other cognitive functions. They may feel fearful or confused and will need time to accept what’s happening to them.

Here are some ideas to consider when raising your concerns:

  • Broach the topic gently
  • Be kind and supportive
  • Let them know you’re worried about them
  • Give examples if you can, such as missing appointments, misplacing items, forgetfulness
  • Remind them that memory issues doesn’t always mean dementia

References

1. Alzheimer’s Society, “Carers for people with dementia struggling in silence”, Reviewed 31 July 2025
2. Alzheimer’s Society, “Fix Dementia Care: NHS and care homes”, Reviewed 31 July 2025
3. GOV.UK, “Anticipatory Grief – the pain of an impending loss”, Reviewed 31 July 2025
4. Buckinghamshire Council, “Young onset dementia”, Reviewed 31 July 2025
5. Alzheimer’s Society, “Getting help and support as a carer”, Reviewed 31 July 2025
6. GOV.UK, “Dementia profile: prevalence and supporting well topics statistical commentary, March 2025”, Reviewed 31 July 2025
7. World Health Organization, “Fact sheets: Dementia”, Reviewed 31 July 2025
8. BBC iPlayer, “Newsnight: Fiona Phillips’s Alzheimer’s – Her Husband Speaks”, Reviewed 31 July 2025
9. Carers UK, “Less than half of us know how to identify an unpaid carer as millions miss out on support”, Reviewed 31 July 2025
10. NHS, “Coping with dementia behaviour changes”, Reviewed 31 July 2025
11. Alzheimer’s Society, “Physical activity, movement and exercise for people with dementia”, Reviewed 31 July 2025
12. Dementia UK, “The benefits of knitting for dementia”, Reviewed 31 July 2025
13. NHS England, “Music and dementia: a powerful connector”, Reviewed 31 July 2025
14. GOV.UK, “Make, register or end a lasting power of attorney”, Reviewed 31 July 2025
15. NHS, “Advance decision to refuse treatment (living will)”, Reviewed 31 July 2025
16. Alzheimer’s Society, “Advance decisions and dementia”, Reviewed 31 July 2025
17. GOV.UK, “Making a will”, Reviewed 31 July 2025
18. GOV.UK, “Carer’s Allowance”, Reviewed 31 July 2025
19. GOV.UK, “Carer’s Credit”, Reviewed 31 July 2025
20. GOV.UK, “Attendance Allowance”, Reviewed 31 July 2025
21. NHS, “NHS continuing healthcare”, Reviewed 31 July 2025
22. GOV.UK, “Personal Independence Payment (PIP)”, Reviewed 31 July 2025
23. Alzheimer’s Society, “How does dementia affect sleep?”, Reviewed 31 July 2025

Last reviewed: 31 July 2025 by Karen, Training Manager and Sally, Registered Manager. This article is updated regularly to reflect the latest best practices in Dementia Care.

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